Friday, March 25, 2011


So here I arrive at my 18th infusion in 2 weeks.  I have four more to go and I will take a short break and resume one of two options.  Either....two infusions twice a week; or 1 week of infusions per month.  Dr. Berkson would prefer the 2 infusions a week, but logistically, I don't know if I can swing that living 4 hours away....sooo we are going to see how my first week home in Fayetteville goes and gage whether or not I can make it at least two weeks on this lower prednisone level (still at 20mgs) without daily infusions.  If not, I am going to have LOTS of windshield time.  I am willing to do WHATEVER it takes with this ALA to make me feel better.

So a big box arrived today...MY SUPPLEMENTS.  Dr Berkson is not just about treating a patients' condition with ALA/LDN, but a general overhaul of your health and well being.  I have never been a big fan of supplements because I never know which one to take, if what i am taking is beneficial, if the product is of quality, etc, etc, etc.  Basically...I saw them as me having really expensive urine.  I usually stand in the aisle at the pharmacy spending about an hour reading the labels, looking at the price and usually pick one based on the packaging...I know, not very educated, right?

Dr. Berkson has changed that for me.  Since there is no regulation on the manufacturing of supplements, there is legitimate concern about what you are actually getting.  Dr. B has toured each of the manufacturers facilities that he recommends so I have a greater faith in taking the vitamins and minerals he suggests and appreciate that he has taken the time to overcome this hurdle for me!  I am going to give you the list of supplements he suggested for me....this is not a recommendation for you to take what I am taking, but I thought that if some of you are already taking some on my list you might change the brand knowing that it comes from a reliable source.

The Big One (Multivitamin with Iron)  from Metabolic Maintenance (MM)
Alpha Lipoic Acid (MM or Biotech)
B Complex (MM, Biotech or Carlson)
Selenium, (MM, Carlson)
Fish Oils - Omega 3's (Nordic Naturals)
Rebuild ( calcium from MM)
Vitamin D (Carlson or MM)
Zyflamend ( New Chapter)
Curcumin ( Biotech)

Hope that helps some of you who stand in those grocery store/pharmacy aisles and stress over what to choose.  I now am reminded that price does not reflect quality, packaging although pretty is pretty for a reason (for people like me) and ingredients are important if you don't want subscribe to expensive pee!

I am feeling about the same today as I did before I left for New Mexico.  This is encouraging to me because I am still coming off my prednisone and not feeling any worse.  I am frustrated by the fact that I have to come of the pred SOOOO slowly and am trying to figure out how fast I can actually taper.  I can tell it is inhibiting my progress on my new treatment.  I am trying to be patient, but can't wait to be the vibrant and active wife, mother, daughter that I once was...

Love you guys!

1 comment:

  1. hang tough, angel... I see you flying so high, carrying this message that gives people without hope, an explosion of hope and happiness. You are just the one HE had in mind when he first led Liz that way. I know he has a plan for her here too, just not sure what it is yet. You are to be the troubadour, the knight in armor that will lead the charge against main-stream-treatment! Liz will be the liaison to the poor people who will never have a chance without both of your efforts.