Well, I have finally made it home to Fayetteville! My hubby and kids were here to welcome me with lots of hugs and kisses. :-)
Last night, I was telling the boys good night on the phone and Adam finally asked, "Mama, where are you?". I think it was the first time he actually realized I was gone! They had such a good time in Montana, no one knew Mama was gone....he he he I am pretty sneaky!
Anyway, when we drive up in my Dad's car (who they call Gaga) they got so excited....sadly, not because I was in it. My kids are literally obsessed with my dad's car. They LOVE that it has a "movie" in it (our car does too, but they just don't get to watch it very often). Gaga has VERY different rules and they get to watch movies to their hearts content when they are in his car. So I think that they think that I opted out of skiing in Montana to ride around with Gaga and watch movies for the week. They kept asking me what movies I watched. Kinda cute.
Well, I didn't get any infusions today, but will go to Hot Springs tomorrow to start my last 6 days of infusions. That means I have 12 infusions left for the loading period. I am feeling not as good today as yesterday, but expect to have good and bad days here at the beginning. To have a few good days littered in would be an improvement from where I have been. Then, maybe there will be a few more good days, a few more and a few more....
The response time varies from patient to patient. From the patients I spoke to with RA it seems to be anywhere from the first day to 3 months. One lady I met had a response the very FIRST infusion. The other patient from Hot Springs had a response at 3 months or so. It seems to be dependent on how much crap (excuse me...toxins) you have in your body when you arrive. The lady who had a response the first infusion had stopped EVERYTHING 3 years before ALA and had decided to just live in pain. Her hands were frozen closed and she was shuffling around and looking into a wheelchair. Since she had no toxins in her system, she seemed to response very quickly. She now walks fine (and dances), and has full use of BOTH of her hands. She receives treatment every 2 months or so. She is 73 and looks better than ME!
The other patient from HS, had just completed chemotherapy from a lymphoma she received from taking Enbrel...ironically the treatment for her lymphoma was Rituxan (the drug that I was to be on before I started ALA). After she received Rituxan for her lymphoma...she headed to Dr. Berkson and ALA/LDN. It took 3-4 months for her to see a response due to the Rituxan and Enbrel working their way out! She is now a new woman with very few limitations physically. She has amazing energy and no inflammation to speak of.
These responses are exciting and encouraging to me!